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The photo is a love and compassion pictorial but maybe more on that in a later entry, I just wanted a photo to go with this one and this gift from friends is the first that came to mind. For now I'll just add that it's also a family portrait. |
It hurt to see him wince while putting books in his bag. He went back to the hospital today. My God how life can change in a mere few weeks.
I was understanding most of what the doctor was saying. The printer spat out pages—one with each click of his mouse as he explained in a calm, caring tone. Our son, my wife and I were sitting across from him. The nurse at his side would hand us the pages. I snapped a shot of one with google translate and tuned out the doctor as I read.
"rare sarcoma … bone…. advanced”
My heart began racing, I felt dizzy then everything went dark. Literally. I like to think of myself as a pretty tough guy. Back in the day I went up against some of the best wrestlers in the nation; have gone toe-to-toe with some pretty damned good full contact karate guys, worked years of hard labor framing homes and have a long list of other tough guy feats of strength that my ego is all too willing to be sure you know about, but this was too much for me. I passed out.
I used to tell the boy how much tougher it was for me. I don't tell him that anymore. Now I tell him how much tougher he is than me. There's not a doubt in my mind about that. He sat stoic as could be and took in every word the doctor said. His mom's tougher than me too. Granted I've held her through tears many times since that moment, but there in the doctor's office the shock of it all took the wind right out of me.
At times still I wonder if it’s really happening. Could this all just be a bad dream? I mean this is the kind of thing that happens to other people. Not us!
But No…. It’s happening. This is life in the here and now, and just as in times of joy the here and now is all we've got.
I'm home from teaching the day’s first round of classes. I start every morning at one of six kindergartens we have contracts with. I didn’t cry this morning as I have when driving to others in recent weeks. I was still holding on to the hope and optimism I gave to the boy and his mom when I left. So no tears to wipe away this morning, but same as mornings with them it was all I could do to don the happy sensei mask, to sing and chant with scores of genki little English learners. The mask fell as soon as I got back into the car. Numbness set in as I drove home. I turned up the volume as a favorite song began to play…
“You’re right,
there’s nothing more lovely,
nothing more profound,
than the certainty, the certainty
that all of this will end
that all of this will end…”
And so it will.
The richest in the world will lose all their wealth.
The prettiest in the world will lose all their beauty.
The most powerful in the world will lose all their power.
The strongest in the world will lose all their strength.
Same holds true for the downtrodden.
The sickest will lose their sickness.
The weakest will lose their weakness.
The poorest will lose their poverty.
And yet, I believe that love somehow transcends it all.
Somehow. In some way. It’s a belief that stems from ideals instilled in me long ago such as:
“Whatever you do unto the least of these, you do unto me”
Love and compassion touch on something outside of this realm. They are of the Spirit.
It's the :...no longer I who live, but Christ who lives in me" as the Apostle Paul put it.
It's the Bodhisattva remaining in this world to ease the sufferings of others. I have no science or data to support this. It’s something that’s come more from life experience. And yet it’s a certainty as solid as that that all of this that we see and touch, taste and smell around us, will indeed end.
It’s been a tough month. This journal—my Mac Pages “2023 Life” file--is now at 68,204 words. At least a good 10K—mostly prose with a bit of poetry mixed in—was written over the past month. Venting thoughts and feelings on the keyboard is a good way to work through emotions for me. There’s been a lot of emotion lately.
My wife told me I should put it on my blog. I thought that kinda strange since she never reads my blog. Heck sometimes I don’t even think she reads my texts! but okay, I’ll do it.
She suggested as much after finding solace in another mother’s blog. Her comment there led to her and that mother now texting daily. That mother and her son will pay us a visit someday in the not so far off future. The son is 25 years old. When he was in high school he was diagnosed with the same that our boy has. It’s rare. It’s deadly. It scares the hell out of me, but maybe my writing on it here will help someone as well.
I also want to share with family and friends who don’t know yet. I’ve pretty much fallen off the social media thing since we returned from a trip to California. It’s so strange this life… We’d taken the boy to the doctor before then. He’d had x-rays, regular shiatsu appointments and back again to the doctor. Nothing showed up. Never in a million years did we expect what the MRI and blood tests eventually revealed after the pain really hit hard a couple times during vacation. Apparently the pain is intermittent with this kind of thing. Still now it comes and goes. Last night fine. This morning hurting.
Thus I started this one with thoughts of sharing it as a blog entry. In time I'll come back to add bits of previous tales of love and compassion and “no coincidences” shots of hope from the Universe--help from Above--embraces from God--moments metaphysical no matter how described--that’ve come over the past month as well.
Things like me just knowing I couldn’t don the “everything’s fine” teacher mask for that one adult student. I told my wife;
“I’m telling M- san”.
People don’t share things like this so much in Japanese culture, especially not in the workplace or with a student who's paying for a service, but I’m not Japanese and if there’s one thing I’ve learned over the past 19 years it’s to follow my heart. And soI began the lesson with:
“You want real communication, right?”
He agreed with a confused look on his face.
Okay… And so I told, only to learn that his son, a teenager now and also my student, was given less than a 10% chance to live when doctors found an even rarer form of cancer in him at 18 months old.
Things like that give us hope. And as I type as much the tears return…
I’ve benefitted much from the works of Joseph Campbell over the years in my own battle with a different disease.
On one of the countless dog-eared and highlighted pages of Reflections on the Art of Living Campbell advises:
“say ’yes’ to life: ‘yea’ to it all.
Participate joyfully
in the sorrows of the world.
We cannot cure the world of sorrows,
but we can choose to live in joy.”
a few pages on he adds:
“If you are lifeworthy,
you can take it.”
Am I "lifeworthy"? Can I take this? So far apparently so. Not always joyfully but I’m here for it. I am here for that boy. If by chance you’ve read through my ramblings this far, then thanks in advance for each and every shot of hope and love, compassion and prayer and good energy.
I think it’s on my FB page, or maybe it’s my Skype account? Somewhere I have another line by Campbell:
“The purpose of the journey is compassion”
The only things we can know for certain in this life are what we experience. Everything else is hearsay. That said I can say with certainty that nothing so much gives rise to compassion as being there for a sick child. This I am able to do today because I followed my heart to my own belief in the Ultimate Reality--in what this Life thing is all about. That in turn has resulted in me still being here to care and provide for the boy, his two healthy siblings and my wife now nearly19 years sober.
Thus I am grateful.
My boy is in the hospital as I type this.
There weekdays and home weekends
Treatment begins.
His mom is still there with him.
As I sit alone at home between classes,
Hurting but not even close to being done with the Joy
And sorrow, and come what may.
Right here
Right now
And I thank everyone who’s heart is with us
No matter your race or religion, who you are, vote for or love or any of the divisions we humans tend to focus on in this life of opposites.
Love and Compassion is transcendent.
It’s the stuff of eternity.